The Diagnosis of Graves’ Disease or any chronic illness can often be bitter-sweet. I felt relieved to know what was wrong with me, but I was also disappointed to find out it was an incurable autoimmune illness.
I also cried when the doctor explained that Graves’ Disease was probably the reason behind my multiple miscarriages. It had been such a dark time in my life, one that had made me feel like a such a failure as a woman. To find out that it was due to an illness and it was of no fault of my own felt liberating.
Did your doctor(s) prepare you for the physical and/or psychological challenges?
My doctors are very competent at their jobs, but none of them ever mentions psychological challenges of living with a chronic illness.
My endocrinologist is forever diminishing the symptoms trying to be encouraging. She doesn’t want me to feel discouraged. Unfortunately, that can also be very frustrating. On the other hand, I know that she is listening, because she referred me to another doctor when some of my symptoms didn’t line up with Graves Disease or Hyperthyroidism. She didn’t dismiss me, but made sure the right person would look into it.
What frustrates you the most about your doctor(s)?
I wish she would take a moment to see the human being facing her and not just numbers and results on medical reports. Sometimes I feel like a number, another statistic.
I would love for doctors to understand how nerve wracking it is to tell them about all our aches and pains in a society that makes us feel guilty for not sucking it up and dealing with it in silence. I would love for doctors to understand that a friendly face can make it easier to share our thoughts, worries, questions. When we feel rushed or when the doctor’s face looks hard as stone, we don’t feel at ease.