What Fibromyalgia feels like

What Fibromyalgia feels like. With Fibromyalgia everything from your mind, to your heart, to your bones and joints will ache without reprieve. There is no “better,” per say, that there will always be ups and downs and spirals and even possible health crises. I’m starting to forget who I was without the pain.

It's not about you - TopicsWithPassion.blogYou find yourself putting on a brave face and a smile for others’ benefit. It takes every ounce of energy you may have just to find your way through the minefield that is able individual’s “normal” routine.

My days are flooded with anxious, racing thoughts.

Sometimes I feel like I’m a guinea pig or an elaborate laboratory experiment. I’m some kind of unsolvable mystery.

After 2 years of medical tests and confusion, I was diagnosed with Fibromyalgia. The medical student who shadows my doctor was fascinated by my case. It’s incredibly interesting medically speaking.

Once I was diagnosed,  they wrote me a first prescription, telling me that the odds were it wouldn’t do anything for me, but the government demands that this be the first treatment. It would be the first prescription of many to follow.

I’m looking forward to the day wherein I can look in the mirror and really love myself; for everything that I am and everything that I am not.


6 thoughts on “What Fibromyalgia feels like

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  1. Thank you for sharing your story on Fibromyalgia, which will help me and many others understand it better.
    Although I have some understanding, to hear it this way of how it really affects YOU, helps me to understand it better.
    Someone who has Fibromyalgia that i once was friends with, thought I had it, but for me, I knew I hadn’t and that it was stress. I was not affected how Fibromyalgia would affect a person But I did think I had something else, that a doctor even considered, but a blood test ruled that out.
    I know that Fibromyalgia can keep you, at it’s worst from not being able to go out, because of the fatigue and tiredness.
    Has it affected you that way before?

    1. It was a 2 Years journey for me before they came to the conclusion that it was Fibromyalgia. They tested me for every illness under the sun. Found a few things, but it could never explain everything. Now I’m starting my treatment journey and I hear from many that it can be quite complicated in itself. Since there is still a lot of stigma and disbelief surrounding this illness, i figure it’s good to share our experiences so that we can better understand what is going on, feel less alone and not let stigma push us into solitary hiding.

      1. I know Fibromyalgia can take some time to diagnose. I think it is a difficult thing to treat because of how it can flare up, by having worser days to others you might class as your usual. I hope the treatment helps.

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