Managing time can be challenging

Living with chronic illness, means being exhausted all the time. That can make it difficult to do even the simplest of tasks, like brushing your teeth or taking a shower – much less trying to make it through an entire day of work, school, appointments and responsibilities.

My calendar is filled with twice as many doctor and specialist appointments as social outings. The rest is taken by work and family obligations.

It doesn’t help that after a night out it takes me a whole week to recover. It also doesn’t help that I’ve cancelled so much on my friends they slowly stop inviting me.

I went to see my stepson play a football game today and had to quit half way through because of pain and slept all afternoon because it had completely drained me.I need to lay down as much as humanly possible before a planned event or activity to save my whatever little energy I have.

Waiting numerous hours for a specialist appointment that lasts five minutes makes you feel crabby, even though you’ve been doing it for years.

I was always a caregiver. I now regularly feel guilty about not being there enough for your family and friends.

Having so little personal time and energy for socializing, made me realize the value to quality over quantity.

“I don’t care much for things that I can’t take with me after I die. Give me love. Moments. Purpose. Things that’ll settle in the soul.” A.R. Lucas

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