Parenting with chronic illness

I'm sharing the following because I know deep inside that I am not alone in this struggle. I know that there is strength in knowing that there is a lot of people out there who understands and go through the same guilt, worry and hopes. I'm always tired. I am forever falling asleep. I can't... Continue Reading →


Understanding exhaustion

Hands up if you didn't get enough restful sleep last night. I'm raising both arms. I have sleep apnea. I stop breathing 53 times an hours. Sitting in the doctor's office, I listen as he explained that even after getting treatment for sleep apnea, I might not feel rested like many of his other patient.... Continue Reading →

Punishing chronic illness sufferers is not okay

The management team at my current workplace made me feel very small. It is becoming clear to me that they view people with chronic illness has being unreliable individual who need attitude correction. What management is doing isn't helping to "correct my attitude". I don't have a bad attitude. I am sick. No matter how... Continue Reading →

My husband, my rock

My heartfelt wish for everyone is that you have one dependable friend or family member, someone who is around when the tears start and you just can't take it anymore. In my life, that person is my husband. We met through a dating website. I took 5 dates before he asked me to hold his... Continue Reading →

Chronic Illness Workers

Individual working with chronic illnesses' guilt is a multidimensional burden. You feel guilty working and pushing the boundaries of what you are capable to do and still not be an ideal employee in the eyes of manager. You feel guilty about not being fully present at your job, or taking time off work because your... Continue Reading →

Strength isn’t about being independent

Strength isn’t about being independent and doing everything yourself. Knowing when and how to ask for a hand shows that you understand your capabilities and aren’t threatened by another's abilities. "You may not control all the events that happen to you, but you can decide not to be reduced by them." - Maya Angelou This... Continue Reading →

Incurable Diseases

I found that people have a lot of trouble accepting that you have an illness that is incurable. I think there are 2 reasons for this. 1. They care about you and don't want to accept that you will be in pain for the rest of your life; 2. The idea that they could get... Continue Reading →

Does autoimmune illnesses affect the healing process?

I used to be a quick healer. I would scratch, cut, or hurt myself and it would be gone really fast. I never paid real attention to my small injuries because I knew it would be gone without issues. Now, everything takes forever to heal and leaves permanent marks. I also bruise a lot easier.... Continue Reading →

The downside of being strong

A manager who had elective surgery last month has recently returned to work after being on short-term medical leave. She is still very sore and feels easily exhausted. She came to me to complain not realizing that it's how I feel on a good day.  She will be working part-time from home because it's simply too... Continue Reading →

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